Neurogenomics Patient & Family Resources

General rare disorder support

• Citizens United for Research in Epilepsy
• Genetic and Rare Diseases Information Center
• National Organization for Rare Disorders
• The Epilepsy Foundation
• Unique: The Rare Chromosome Disorder Support Group

For metabolic conditions such as leukodystrophies or mitochondrial disorders, please visit the Neurometabolic Clinic’s “Patient and Family Resources” page.