Leukodystrophy Patient and Family Resources

Websites of interest

Leukodystrophy Community

The Hunter’s Hope Leukodystrophy Care Network (LCN) is a community of affected families, organizations and medical providers committed to revolutionizing the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers. 

ALD Connect is a resource for patients and families affected by ALD.

The United Leukodystrophy Foundation is a resource for patients and families affected by all leukodystrophies.