Epidermolysis Bullosa (EB)

Lucile Packard Children's Hospital Stanford provides the expert multidisciplinary care necessary to address the complex needs of children with epidermolysis bullosa. Epidermolysis bullosa is a disease that causes extreme skin fragility, leading to recurrent blister growth.

Our Pediatric Epidermolysis Bullosa Clinic is staffed by a team of doctors and expert providers in the care of this rare genetic skin disorder. It is a severe condition that requires ongoing, focused treatment. Our experts educate you and your child about the disease, offer support and guidance, and work together with you to develop a comprehensive plan for the care and management of your child’s condition.

Growing new skin for patients with EB

Our doctors are well-known nationwide for creating new, exciting treatments for children with incurable diseases, including complex and rare skin conditions. Our team pioneered a gene therapy that can heal painful, open wounds in children with epidermolysis bullosa, empowering them to live better, more enjoyable lives. It received FDA approval in 2025.